16/1/15

The month is halfway through and nothing much is happening.  Various frustrations with authorities.  When we left the hospital they said to arrange to borrow a wheelchair from Red Cross for a short time until our wheelchair came through, we had a letter saying they had received the request and we would hear something shortly.  As the wheelchair that we have borrowed from Michelle's family is not 100% satisfactory for Ron, I phoned the wheelchair people and they said they aimed to provide wheelchairs in 18 weeks!    The physio's office is in Welwyn and they plan to be in touch with us for a meeting and assessment in two weeks but we have not yet heard.  Ron is getting rather bored.   It is great when anyone comes to visit.  

We look forward to the weekends when Graham is kind enough to take us out wherever we want to go.  This Saturday we are going to look at electric wheelchairs and chairs that tip you out.  Today Graham is meeting the wheelchair guy at our house.

We have stopped two carers visits so we have the one in the morning which is supposed to be get out of bed but we manage that ourselves so by the time they come (between 9.30 and 10.30) Ron has been up for 3 1/2 - 4 1/2 hours but they take him to the bathroom and then wash or shower him.  We have also retained the afternoon visit but rarely use it so will be dispensing with it eventually.  I I am hoping to go out for the day on 11th Feb but is will take some arranging as it is an early start 8.00 in Stansted and I will probably not be back until 6.00ish.  It is a U3A outing to "secret London"  I have to arrange for someone to be here to take Ron to the toilet, someone he would be happy with helping him with personal care, maybe I can find a private carer - needs discussing.   I could do breakfast before I go and leave a packed lunch and dinnner would wait till I return but then there are meds to be   sorted......

Otherwise everything is going well and we are managing better than anticipated.