Some good news
Yes we are home in our newly converted to wheelchair friendly house. Thanks to lots of hard work especially by Graham and Ryan who have had to sacrifice a lot of family time. We are so grateful. There really is nowhere like your own home.
The other good news is that Ron seems to be recovering from the horrible side effects of the drug that he was taking for his spasms. They had a horrible effect on him all known side effects- muscle weakness, sleepiness and urinary frequency but it was the muscle weakness which was worse where previously he was walking 15 or 20 yards, after around a week on the tablets he was no longer able to stand for more than a minute or two so it was back to the rotastand - and backwards is not somewhere we want to go, Ron had to only take half a tablet 3 times a day and the whole tablet was not much bigger that a sweetener such power in drugs! Unfortunately you cannot stop them straight away, you have to come off them gradually, Yesterday was the first day with none and today Ron is able to walk again albeit very hesitantly. For those of you that like to know, Baclofen was the drug. I don't know what proportion of people are affected like Ron but I am surprised that a stroke doctor would prescribe this.
It was really hard work moving yesterday but I wanted to get it done and dusted. By the time I got back with the second load (who knew Nissan Micras were removal vans) I was exhausted and never more pleased to see Michelle's car parked on the drive.
Another little niggle we have no sound on the TV, it was OK yesterday but Ron watched a video and had control of the buttons so who knows what he pressed but we spent hours trying to get it to work and Ryan did also with no luck - Formula 1 this weekend !!!
Next physio session on Monday - hope Ron is back to where he was before this set back.
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